Nicole Luongo writes about a disturbing cerebral palsy news trend, why the media must stop describing people with disabilities as ‘suffering’ + the power of positive language. Words matter.
What do you see when you look at me? This disability poem from Marty Gregoire, founder of Footsteps of WYN, shatters perceptions in a powerful way.
My work as a disability advocate has introduced me to people, opportunities from around the globe. I’m particularly proud to be a member of the first World CP Day Committee. I had the honor of interviewing Robyn Cummins from World CP Day (WCPD), which was founded in 2012, and is now celebrated in 62 countries. Robyn
Disability advocate Nicole Luongo vlogs about her incredible journey with SDR, a life-changing surgery for cerebral palsy— and how it led to an interview with Special Books by Special Kids.
Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay! I’ve heard about the benefits of Pilates, and I’ve wanted to try it. I know it will work my muscles in an entirely different way. Jumping around
So be sure when you step, Step with CARE and great TACT. And remember that Life’s a great Balancing Act!” ~Dr Seuss: Oh, The Places You’ll Go! I have cerebral palsy. I had selective dorsal rhizotomy (SDR) with Dr. T.S. Park. I’m 2.5 years (and one month) post-op. Here’s a progress video documenting my improved
I have cerebral palsy. This is how I run almost eleven months after my Selective Dorsal Rhizotomy (SDR) surgery with Dr. TS Park on March 29, 2013. Note: I could run before SDR.
SDR Update Today is my anniversary. Six months ago (on 3/29/13), I had selective dorsal rhizotomy (SDR) surgery. It’s the only surgical procedure that can permanently remove tightness caused by spastic diplegia, the most common type of cerebral palsy. My four month follow-up visit in St. Louis with Dr. T.S. Park went well. He was thrilled
I recently purchased a Living Social deal for four indoor rock climbing sessions. I’ve never done it before, so I have to get ready! Jon, my physical therapist at Plantation Medical Rehab & Wellness, created this contraption. Unfortunately, the volume on my camera stinks so you may not be able hear him explaining what we