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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Poetry

    This Moment

    This moment is mine and I’m gonna take it I’ve done the hard work and I’m gonna make it I’m gonna get there I know I will it will take time but my dream is worth it Right now, all I have is this moment my moment and I’m gonna take it and make it

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    • The Seattle Great Wheel Goes Green for World CP Day! Credit: King 5 News
    The Seattle Great Wheel Goes Green for World CP Day! Photo credit: King 5 News
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    • #FBF: On Good Friday six years ago today (March 29, 2013), I had selective dorsal rhizotomy (SDR) surgery with Dr. Park in St. Louis... . Click the link in my BIO to watch my progress — and the dance videos I made for Dr. Park — just six months after the life-changing operation.. . Or go to https://nicoleluongo.com/dancing-with-sdr/ #nicoleluongo #cerebralpalsy #whatCPlookslike #drpark #stlouis #GoodFriday #flashbackfriday #dancing #SDRChangesLives #dwaynejohnson #success #youtube
    • Twelve years ago today, I was interviewed by @trinanbc6 on @nbc6 about my poetry book, Naked Desires.. . This was a live shot one of my friends took in the studio.. . Click the link in my BIO to watch my interview and find out more about my book or go to - https://nicoleluongo.com/about-naked-desires-book/ #nicoleluongo #whatCPlookslike #cerebralpalsy #author #poet #nakeddesires #NBC6 #NationalPoetryMonth
    • Twelve years ago today, I was interviewed on @nbc6 about my poetry book, Naked Desires... . Click on the link in my BIO to watch it or go to https://nicoleluongo.com/about-naked-desires-book/.. . I’d never been on live t.v. before, so this was an exciting day! My best friend @reneeholiday drove me to the studio, and it meant so much to me to have her by my side. Another mutual friend @tone_simple_pirate came to the studio to support me. . The guy who inspired the book was there too, but as usual, he tried to make everything about him. . . He was in a bad mood, and I was determined not to let that take away from my moment to shine.. . Here are some things most people don’t know: . In 2002, I self-published my book for $110.. . I sought out, booked the interview by myself over e-mail that I checked at the library. I’ve always been my own agent.. . I mailed a copy of my book to the studio ahead of time, but it wasn’t there.. . Of course, I came prepared with a hard back edition of my book and an easel, which you’ll see on the set.. . I got my hair done the day before.. . I did my own makeup. I had terrible acne my entire life, and this was a rare time — thanks to antibiotics and prescription medications (which I’d tried before over the years, along with countless other products) — that I had clear skin.. . I picked out my own wardrobe. My Kimono top is from @lauriefelt when she was on @hsn. I think my black pants from the @gap were $10 on clearance! They were so soft, and they looked expensive.. . I borrowed the necklace I’m wearing from my mom.. . I wasn’t feeling well the day of the interview (not nerves). The joys of being a woman LOL!.. . My answers to the interview questions were spontaneous. I wasn’t given them ahead of time. I met Trina —who hadn’t read my book but she’s so good at what she does, you’ll *think* she did — a couple of minutes before we went on the air.. . Thankfully, I’ve always been good at impromptu speaking, and it paid off!.. . My friends snuck a signed copy of my book in the bookcase on the set. That was fun! #nicoleluongo #whatCPlookslike #cerebralpalsy #authorsofig #poetsofig #nakeddesires #NBC6 #NationalPoetryMonth
    • UPDATE: There was no #GoGreen4CP lighting in the state of Colorado on March 25, 2019. From Pueblo Memorial Hall in Pueblo, Colorado: "Unfortunately this was not lit up as communicated due to maintenance issues that took place that night.” I look forward to @pueblomemorialhall lighting up on October 6 for @worldcpday. . I’m up to 90 confirmations in 48 states! https://nicoleluongo.com/go-green-4-cp/ #nicoleluongo #GoGreen4CP #GoGreen4CP2019 #GoGreenforCP #cerebralpalsy #nationalcerebralpalsyawarenessday #pueblo #colorado
    • @worldcpday, thank you for the feature article about my Go Green for CP campaign!.. . Follow @worldcpday + read the article here - https://worldcpday.org/our-campaign/public-awareness/cerebral-palsy-is-lighting-up-the-world/.. . I’m still trying to confirm all of my Go Green for CP lightings on March 25, 2019 on National Cerebral Palsy Awareness Day. . . So far, I’ve confirmed at least one lighting in 48 states — 90 lightings total!.. . There are still about 15 lightings for which I cannot get a reply. . . The only states that didn’t light up are Colorado (maintenance issues) + Connecticut (the participant’s equipment wasn’t working). . I’m the first person to get lightings in almost all 50 states. I’m doing it again on October 6 for World CP Day!.. . Thank you to everyone who supported me along this journey, and to anyone who wore green for me. 💚💚 #nicoleluongo #cerebralpalsy #whatCPlookslike #GoGreen4CP #GoGreen4CP2019 #worldcpday
    • Do you ever feel like you’re not enough?This is how I’ve been feeling lately because... . If I were enough, I wouldn’t be alone all the time.. . If I were enough, people would miss my company and want to spend time with me. No one is THAT busy!.. . Doing life alone isn’t easy and I’ve hit a wall again.. . When this happens, I don’t feel like doing anything... . I haven’t worked out since March 24 but I started a new #GHUTV calendar today! I’m starting slowly with 20 minutes a day... . Repeat after me: I AM ENOUGH! #nicoleluongo #whatcplookslike #iamenough #selfie #selfcare #nationalstressawarenessday
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