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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

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  • About Nicole
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    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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    whatcplookslike

    #Author of Naked Desires
    >100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
    Get a FREE eye cream with a $20 order @valentiaski Get a FREE eye cream with a $20 order @valentiaskincare! Deal end TONIGHT (2/23) at midnight... • • Save a bundle by ordering one of their bundles (that’s what I did)... • • Give your skin #allnaturalskincare and watch it #glow with appreciation! #allnatural #organicskincare #luxuryskincare #madeinusa #buyit #tryit #newyork #notanad #payitforward
    ARE THESE BOOTS MADE FOR WALKING? Let’s talk abo ARE THESE BOOTS MADE FOR WALKING? Let’s talk about #accessibility... • • I hardly ever go out, so when my brother surprised me with 🎫 to see @jerryseinfeld at @hardrockholly last night, I was thrilled!... • • Unfortunately, ours was a horrible experience because we had to walk approximately TWO BLOCKS from where we parked (all the disabled parking spots were full) just to get to the hotel, then there was more walking all around the hotel just to reach the venue... • • We weren’t expecting any of this because it wasn’t like that the last time we went to a show at @hardrockholly (before they built that stupid looking 🎸 (and very $$$) guitar hotel, also to see Jerry... • • While we were walking to@the hotel, another patron told one of the employees and said that should provide a shuttle for people attending the show. I completely agree... • • I have #cerebralpalsy - you may not know it by looking at me, but all of that walking (although I am able to do it) takes a lot out of me. And, we had to do it all over again after the show!... • • I thought about my friends with #disabilities, the elderly or anyone who wouldn’t have been able to make that walk. What would they have done? There were NO options. My guess is they would have had to get back into their cars and try the valet?... • • This makes me MAD! 😡 Everyone with a #disability has a right to go to a show and have fun like everyone else... • • We already have to prepare ourselves (some more than others) and research our accessibility options. I brought my disabled parking placard, in case we got a spot... • • Unfortunately we didn’t, and that’s okay — what’s not okay is having no advanced warning that we World have to walk two blocks to the venue... • • I plan to contact @hardrockholly to hopefully change this in the future. If any of you have advocated for accessibility, please let me know what I can do to not only get them to listen to me, but to actually DO SOMETHING! P.S. Jerry was great! #nicoleluongo #disappointed #whatcplookslike #cerebralpalsyawareness #disabilityawareness #disabilityadvocate #jerryseinfeld #hardrock #hardrockhotel #hollywoodfl #hollywoodflorida #casinos #accessible #dobetter
    I finally had the chance to use @facesilk to remov I finally had the chance to use @facesilk to remove my makeup!... • • My lipstick was already gone after dinner but @facesilk removed every bit of my makeup using WATER!... • • There’s a bit more makeup on the other side of the cloth, too. #nicolreluongo #whatcplookslike #makeupremover #makeupremoval #facesilk #itworks💚
    I’m ready to see @jerryseinfeld tonight at @hard I’m ready to see @jerryseinfeld tonight at @hardrockholly! #nicoleluongo #whatcplookslike #saturday #jerryseinfeld #hardrockhotel #hollywoodfl #qvc #qvcbeauty #livetinted
    These @stevemadden shoes 👠 for girls are perhap These @stevemadden shoes 👠 for girls are perhaps the prettiest I’ve ever seen!... • • I couldn’t wait to try them on, thinking I’d finally be able to wear big girl shoes... • • Unfortunately, the heel (although low, which is what I need) is too skinny and I can’t walk in it. So sad 😞... • • I’ve loved shoes my entire life, but I have #cerebralpalsy and #thestruggleisreal!... • • Most of the shoes in my size (girls size 2-3) either have bows on them (seriously, what’s with all the BOWS?) or they look like they’re for little girls... • • I just want an adult dress shoe for a woman over 45 I can actually walk in!... • • If Nike can design #FlyEase with someone who has CP, then there has to be a shoe designer willing to help out women who have a disability. I nominate @stevemadden and/or @badgleymischka!... • • Can you relate? #nicoleluongo #whatcplookslike #shoes #sparklyshoes #stevemaddenshoes #stevemadden #badgleymischka
    I wanted something quick for lunch. @cookingwithka I wanted something quick for lunch. @cookingwithkarli’s Skinny Alfredo for the win!... • • I used Half + Half (instead of evaporated milk) plus, I added @greekcreamcheese and some chicken. #nicoleluongo #whatcpcookslike #instantpot #instantpotrecipes #instantpotmeals #alfredo #alfredopasta #linguine #italianfood #yummy
    I love the #glow from my first @migsoap order!... I love the #glow from my first @migsoap order!... • • I’m transitioning my face + body skincare to #allnaturalbeauty and/or #organicskincare products... • • Right now I’m trying products from @clnanddrty @migsoap @someessentials @soletoscana + @valentiaskincare... • • Check these companies out + follow them. You’ll be glad you did! #nicoleluongo #whatcplookslike #nomakeup #nomakeupselfie #selfie #selcare #smile #glowingskin #skincare #naturalbeauty
    So, I finally tried @migsoap!... • • My skin c So, I finally tried @migsoap!... • • My skin can tell there’s something different about these products... • • I’m looking forward to using them more, seeing how my face/body responds... • • Have you tried @migsoap? #naturalskincare #naturalskincareproducts #mig #madeinusa #colorado #luxuryskincare
    #breakfast is served! This #bakedoatmeal recipe fr #breakfast is served! This #bakedoatmeal recipe from @the.foodie.eats is one of my all-time favorites!... • • P.S. I added one large banana, @bobsredmill flax seed meal + @furtherfood’s vanilla #collagen powder to the recipe. It turns out perfectly every time, no matter what you add. #nicoleluongo #whatcpcookslike #instantpot #instantpotmeals #instantpotrecipes #banana #chocolate #peanutbutter #yummy #thursdayvibes
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