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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

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  • About Nicole
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  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Why Cerebral Palsy Representation Matters

    Cerebral Palsy

    Why Cerebral Palsy Representation Matters

    Nicole Luongo explains why Cerebral Palsy Representation, and how you can help the word out during Cerebral Palsy Awareness Month.

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  • Don't You Forget About CP

    Cerebral Palsy

    Don’t You Forget About CP

    ‘Don’t You Forget About CP’ is a call to action for the cerebral palsy community to help promote awareness. Our stories matter, and they need to be told.

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  • Promote Cerebral Palsy Awareness

    Cerebral Palsy

    Let’s Promote Cerebral Palsy Awareness Together

    Disability advocate Nicole Luongo discusses how you can promote cerebral palsy awareness + why you should get involved in the advocacy movement.

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  • Go Green for CP World CP Day

    Cerebral Palsy

    5 Reasons to Go Green on World CP Day

    Cerebral palsy advocate Nicole Luongo explains five reasons why you should Go Green on World CP Day, which is celebrated annually on October 6.

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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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  • Follow This Success Formula, Achieve Anything!

    Cerebral Palsy

    Follow This Success Formula, Achieve Anything!

    Nicole Luongo shares the success formula she applied after selective dorsal rhizotomy (SDR) surgery. Follow her simple advice to achieve anything in life. Ability + Motivation + Attitude = The Secret to Success!

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  • Bike Camp Bravery with Cerebral Palsy

    Cerebral Palsy

    Bike Camp Bravery with Cerebral Palsy

    Cerebral palsy advocate Nicole Luongo vlogs about braving bike camp at 41 years old, after having selective dorsal rhizotomy (SDR) surgery in 2013. Watch her do what she once thought was impossible.

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  • Mental Health: Take Charge, Feel Better

    Cerebral Palsy

    Mental Health: Take Charge, Feel Better

    May is Mental Health Awareness Month. Let’s talk about it, take charge of it, end the stigma! Learn the statistics, tips to feel better and find out about the connection between cerebral palsy + mental health.

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  • White House Response Regarding Cerebral Palsy Awareness

    Cerebral Palsy

    White House Cerebral Palsy Awareness Response

    Disability advocate Nicole Luongo shares what happened when she wrote to The White House about Cerebral Palsy Awareness Month + SDR, a life-changing surgery for adults and children with cerebral palsy. Follow her tried-and-true tips to get your cause noticed.

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    whatcplookslike

    #Author of Naked Desires
    >100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
    On International Day of Persons with Disabilities On International Day of Persons with Disabilities (@idpwd_org) remember that we want, DESERVE the same things as everyone else: * An ACCESSIBLE environment (home, work, travel, etc.) without having to FIGHT for it EVERY. DAY. * Good, quality HEALTHCARE for our mental, physical well-being * LOVE and the RIGHT to MARRY without losing our disability benefits * The RIGHT to earn as much MONEY as we're capable of without being penalized What would you add? Tell me in the comments below! 💚💚💚 #Accessibility #CerebralPalsy #Disabilities #DisabilityRights #DisabilityPride #IDPD #IDPwD #IDPwD2021 #Equality #Healthcare #Inclusion #whatCPlookslike [ID: A white background. On the left is the official logo of International Day of Persons with Disabilities from Google Images. On the right, the text in blue reads: International Day of Persons with Disabilities 3 December.]
    It’s #GivingTuesday, so I donated to my friend @ It’s #GivingTuesday, so I donated to my friend @maryfashik’s campaign. Every little bit helps, so please donate if you can, OR simply share the link so people can contribute. I know the stress, uncertainty involved with a fundraiser. Back in 2013, I spent six months of my life sharing my SDR fundraiser non-stop, and I’ll never forget all the kind people (most of whom I don’t know) who helped me. I still have a list of every single donation. Mary has #CerebralPalsy, and she needs a new wheelchair. Unfortunately, custom medical equipment is EXPENSIVE, often NOT covered by insurance. It shouldn’t be that way…but it is… Mary has helped so many of us with her advocacy work, so let’s help her. Merchandise is now available in her store, and the proceeds go towards the fundraiser. Go to @upgradeaccessibility to learn more. **NOTE: If you’ve been following me for awhile, you know that I DON’T share random fundraising links on my pages, so please don’t ask. I personally know Mary.** She’s #whatCPlookslike! #Repost @courtney.has.words with @make_repost ・・・ 🍂In spite of the injustice over the last week, WE have an opportunity to bring about true liberation for a dear friend and comrade. Mary Fashik is a queer, brown disability activist and the founder of @upgradeaccessibility. Mary is a wheelchair user and is in need of an accessible van. We are seeking to raise $75,000 so that she can purchase the van that will meet all of her mobility needs. Obtaining this van would mean Mary can attend much needed doctor’s appointments, see friends and family, and continue her important liberation work. If you are looking for a place for your energy and resources during this very difficult time, please seriously consider sharing this post and giving to our fundraiser. Also look out for a special merch in the coming weeks with all proceeds going to our fundraiser! 💜 (Post Description in the comments).
    #ThabkfulNovember Day 24: The holidays are hard fo #ThabkfulNovember Day 24: The holidays are hard for me. I’m thankful for this box of treats that arrived (via @justjillbauer)! Thanks Susan @littleredkitchen …YUM! Happy Thanksgiving to you, your staff, and to Jill and her family, too. 🦃🦃🦃 #Bakery #Cookies #Blondies #AllNatural #Homemade #SmallBatch #Brooklyn #JustJill #SupportSmallBusiness
    #ThankfulNovember Day 22: I’m thankful to the Un #ThankfulNovember Day 22: I’m thankful to the Universe for the package of chicken thighs that accidentally ended up in my delivery order last week. I was all out! Chicken soup in an @instantpotofficial Pot is THE BEST! I mixed two @betterthanbouillon flavors — chicken and garlic (which I’m trying for the first time)— OMG, try it!! ⬇️⬇️⬇️ *All the vegetables are from my @hungryharvest box. You can get $10 off your first box with my link (in bio).* Tip: Add fresh thyme to soup for even more flavor. 🍜🍜🍜 #GiveThanks #CerebralPalsy #ChickenSoup #ChickenSoupForTheSoul #InstantPot #Soup #whatCPcookslike [ID: A picture of chicken soup in a green bowl. It’s made with chicken thighs, chicken broth, garlic broth, carrots, celery, kale, onion, Ditalini pasta, fresh thyme, spices and BelGioioso Romano cheese.]
    #ThankfulNovember Day 21: I’m thankful I’m a # #ThankfulNovember Day 21: I’m thankful I’m a #BoostedBabe (thanks, @publix). 💉 💉 💉 #Boosted #CerebralPalsy #whatCPlookslike #ModernaBooster #GetBoosted #GiveThanks #GetVaccinatedToBeProtected #SouthFlorida #SundayFunday [ID: Nicole is sitting in her car smiling at the camera. She’s wearing a purple shirt, and the right sleeve is pulled up to the shoulder, showing the Publix Pharmacy bandaid over the spot where the Moderna booster shot was administered.]
    #ThankfulNovember Day 20: I’m thankful for this #ThankfulNovember Day 20: I’m thankful for this delicious recipe from Jeff @pressureluckcooking. It saved my bananas! They would have gone in the trash, but I repurpose them for baking. if you know me, you know I love Jeff, his books and his recipes. I used: @kitchenaidusa (stand mixer) @instantpotofficial Really Raw Honey @madhavafoods (Coconut sugar) @natureseats (Almond Flour) @ghirardelli (60% Cacao Dark Chocolate Chips) @organicvalley (Ghee) 🍌🍌🍌 #CerebralPalsy #whatCPcookslike #BananaBread #Baking #GlutenFree #InstantPot #Yum [ID: Four photos in a single layout. Counterclockwise 1. Uncooked banana bread mixture inside an official Instant Pot fluted Bundt pan. 2. Banana bread with dark chocolate chips in an official Instant Pot fluted Bundt pan. 3. A slice of banana bread with dark chocolate chips on a green plate. 4. Banana bread with dark chocolate chips on a multicolored plate.]
    #NovemberThanks Day 19: I'm thankful for water. #NovemberThanks Day 19: I'm thankful for water. Late last night, I got an e-mail saying the water would be shut off in my building from 9AM-2PM. This doesn't happen very often, but sometimes it's necessary. As of 10:30 AM, the water is still on, but I'm glad I got my shower out of the way! What are you thankful for? 💧💧💧 #GiveThanks #CleanWater #CleanWaterForAll #Water [ID: A photo of running water by Hilary Haliwell from Pexels.]
    #ThankfulNovember Day 18: I’m thankful for the u #ThankfulNovember Day 18: I’m thankful for the unexpected surprise my sister included with my @hallmark @hallmarkchannel mug! The Painting Petunias Art on a Towel is a one-of-a-kind work of art that’s hand painted in #KansasCity. It’s the little things that make me happy! 🎄🎄🎄 What are you thankful for? [ID: Three photos in a single layout. Counterclockwise 1. A picture of an official Hallmark mug. It’s red with green around the rim, and it says This is My Hallmark Channel Watching Mug. 2. A Painting Petunias Art on a Towel tea towel. A white background with two hand painted flowers with yellow petals. Below the flowers give grace is written in cursive in black text. 3. Part of the black text on the white card that accompanied the towel. It reads: Our hand-painted creations garner laughs and offer comforting sentiments. They start conversations. One of a kind works of art, they come straight from the heart. So laugh, talk, be inspired. And yes, dry your damn dishes. Below, in blue text, says 100% Cotton 30”X 30” Machine Washable Towel Hand Painted in Kansas City followed by the e-mail address paintingpetunias@gmail.com.]
    #ThankfulNovember Day 17: I’m thankful I’m ali #ThankfulNovember Day 17: I’m thankful I’m alive. I was born 2.5 months premature, weighed 2 lbs 13 ounces (the size of a baby chicken). My mom (44.5, I was her eleventh, youngest child) had a difficult delivery. The doctors weren’t sure if I’d survive. P.S. I’m three days old in this picture. I spent two months in that incubator before going home. 💜💜💜 #NicoleLuongo #CerebralPalsy #WhatCPLooksLike #PrematurityAwarenessMonth #WorldPrematurityDay #WorldPrematurityDay2021 #PreemiePower #GiveThanks [ID: A picture of Nicole in an incubator when she was three days old.]
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