• The Cerebral Palsy News Trend Media Must End

    Have You Seen This Cerebral Palsy News Trend? When an adult or child with CP is featured in the media, the story usually follows a disturbing cerebral palsy news trend: damaging descriptive language. Think about it. How many times have you read a headline describing us as ‘suffering?’ There are countless inspirational articles with this negative

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  • FB Live Interview: Kathy O’Connell’s Tips for Dating with a Disability

    Dating with a disability can be challenging. We all want to find a partner who loves us for our abilities, not our limitations. Due to my own frustrations, I gave a Toastmasters speech about my idea of the perfect man. Get ready to laugh out loud! I’ll Have What She’s Having Have you ever admired someone

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  • Disability Poem Shatters Perceptions in a Powerful Way

    I’m an author, poet living with cerebral palsy (CP). When I read this disability poem by Marty Gregoire, who also thrives with CP, — and is the founder of Footsteps of WNY, an organization that provides charitable assistance to individuals with cerebral palsy — it really spoke to me. Benefits of Writing Poetry There are many benefits to

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  • My Journey from SDR to Special Books by Special Kids

    Cerebral Palsy & SDR I have cerebral palsy (CP) and in 2012, I stumbled across information on Facebook about a life-changing surgery called selective dorsal rhizotomy, or SDR. I’d just turned 39, wondered why I’d never heard about a procedure that could have made me — and my legs — navigate the world much easier.

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  • SDR Update: Pilates and Physical Therapy

    Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay! I’ve heard about the benefits of Pilates, and I’ve wanted to try it.  I know it will work my muscles in an entirely different way. Jumping around

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