Let’s talk about cerebral palsy self-care tips! In this Facebook live video, I discuss simple things we can do to take care of ourselves. Here are some examples: Drinking water Taking vitamins Exercising Meditating Listening to music Self-care is essential for living a healthy, productive life. Practicing good habits allows people with or without disabilities
Cerebral palsy affects 17 million worldwide, is the most common childhood disability, yet it’s still widely misunderstood. Nicole Luongo debunks popular cerebral palsy (CP) myths in this What CP Looks Like FB Live video.
“Disability is natural. We must stop believing that disabilities keep a person from doing something. Because that’s not true – having a disability doesn’t stop me from doing anything.” Benjamin Snow, director of the award-winning short film, Thumbs Down to Pity. Thinking About Disabilities Some of the best ideas come to me when I’m in
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) defines physical fitness as “a general state of health that results in your ability to carry out daily tasks without getting too tired.” It wasn’t until I had selective dorsal rhizotomy (SDR) surgery and became a disability advocate — that I learned the damage (often referred to as “early aging”) spasticity, or abnormal muscle tightness, does to our bodies.
Have You Seen This Cerebral Palsy News Trend? When an adult or child with CP is featured in the media, the story usually follows a disturbing cerebral palsy news trend: damaging descriptive language. Think about it. How many times have you read a headline describing us as ‘suffering?’ There are countless inspirational articles with this negative
Dating with a disability can be challenging. We all want to find a partner who loves us for our abilities, not our limitations. Due to my own frustrations, I gave a Toastmasters speech about my idea of the perfect man. Get ready to laugh out loud! I’ll Have What She’s Having Have you ever admired someone
I’m an author, poet living with cerebral palsy (CP). When I read this disability poem by Marty Gregoire, who also thrives with CP, — and is the founder of Footsteps of WNY, an organization that provides charitable assistance to individuals with cerebral palsy — it really spoke to me. Benefits of Writing Poetry There are many benefits to
My work as a disability advocate has introduced me to people, opportunities from around the globe. I’m particularly proud to be a member of the first World CP Day Committee. I had the honor of interviewing Robyn Cummins from World CP Day (WCPD), which was founded in 2012, and is now celebrated in 62 countries. Robyn
Cerebral Palsy & SDR I have cerebral palsy (CP) and in 2012, I stumbled across information on Facebook about a life-changing surgery called selective dorsal rhizotomy, or SDR. I’d just turned 39, wondered why I’d never heard about a procedure that could have made me — and my legs — navigate the world much easier.