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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
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  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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    • The Seattle Great Wheel Goes Green for World CP Day! Credit: King 5 News
    The Seattle Great Wheel Goes Green for World CP Day! Photo credit: King 5 News
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    • Twelve years ago today, I was interviewed by @trinanbc6 on @nbc6 about my poetry book, Naked Desires.. . This was a live shot one of my friends took in the studio.. . Click the link in my BIO to watch my interview and find out more about my book or go to - https://nicoleluongo.com/about-naked-desires-book/ #nicoleluongo #whatCPlookslike #cerebralpalsy #author #poet #nakeddesires #NBC6 #NationalPoetryMonth
    • Twelve years ago today, I was interviewed on @nbc6 about my poetry book, Naked Desires... . Click on the link in my BIO to watch it or go to https://nicoleluongo.com/about-naked-desires-book/.. . I’d never been on live t.v. before, so this was an exciting day! My best friend @reneeholiday drove me to the studio, and it meant so much to me to have her by my side. Another mutual friend @tone_simple_pirate came to the studio to support me. . The guy who inspired the book was there too, but as usual, he tried to make everything about him. . . He was in a bad mood, and I was determined not to let that take away from my moment to shine.. . Here are some things most people don’t know: . In 2002, I self-published my book for $110.. . I sought out, booked the interview by myself over e-mail that I checked at the library. I’ve always been my own agent.. . I mailed a copy of my book to the studio ahead of time, but it wasn’t there.. . Of course, I came prepared with a hard back edition of my book and an easel, which you’ll see on the set.. . I got my hair done the day before.. . I did my own makeup. I had terrible acne my entire life, and this was a rare time — thanks to antibiotics and prescription medications (which I’d tried before over the years, along with countless other products) — that I had clear skin.. . I picked out my own wardrobe. My Kimono top is from @lauriefelt when she was on @hsn. I think my black pants from the @gap were $10 on clearance! They were so soft, and they looked expensive.. . I borrowed the necklace I’m wearing from my mom.. . I wasn’t feeling well the day of the interview (not nerves). The joys of being a woman LOL!.. . My answers to the interview questions were spontaneous. I wasn’t given them ahead of time. I met Trina —who hadn’t read my book but she’s so good at what she does, you’ll *think* she did — a couple of minutes before we went on the air.. . Thankfully, I’ve always been good at impromptu speaking, and it paid off!.. . My friends snuck a signed copy of my book in the bookcase on the set. That was fun! #nicoleluongo #whatCPlookslike #cerebralpalsy #authorsofig #poetsofig #nakeddesires #NBC6 #NationalPoetryMonth
    • UPDATE: There was no #GoGreen4CP lighting in the state of Colorado on March 25, 2019. From Pueblo Memorial Hall in Pueblo, Colorado: "Unfortunately this was not lit up as communicated due to maintenance issues that took place that night.” I look forward to @pueblomemorialhall lighting up on October 6 for @worldcpday. . I’m up to 90 confirmations in 48 states! https://nicoleluongo.com/go-green-4-cp/ #nicoleluongo #GoGreen4CP #GoGreen4CP2019 #GoGreenforCP #cerebralpalsy #nationalcerebralpalsyawarenessday #pueblo #colorado
    • @worldcpday, thank you for the feature article about my Go Green for CP campaign!.. . Follow @worldcpday + read the article here - https://worldcpday.org/our-campaign/public-awareness/cerebral-palsy-is-lighting-up-the-world/.. . I’m still trying to confirm all of my Go Green for CP lightings on March 25, 2019 on National Cerebral Palsy Awareness Day. . . So far, I’ve confirmed at least one lighting in 48 states — 90 lightings total!.. . There are still about 15 lightings for which I cannot get a reply. . . The only states that didn’t light up are Colorado (maintenance issues) + Connecticut (the participant’s equipment wasn’t working). . I’m the first person to get lightings in almost all 50 states. I’m doing it again on October 6 for World CP Day!.. . Thank you to everyone who supported me along this journey, and to anyone who wore green for me. 💚💚 #nicoleluongo #cerebralpalsy #whatCPlookslike #GoGreen4CP #GoGreen4CP2019 #worldcpday
    • Do you ever feel like you’re not enough?This is how I’ve been feeling lately because... . If I were enough, I wouldn’t be alone all the time.. . If I were enough, people would miss my company and want to spend time with me. No one is THAT busy!.. . Doing life alone isn’t easy and I’ve hit a wall again.. . When this happens, I don’t feel like doing anything... . I haven’t worked out since March 24 but I started a new #GHUTV calendar today! I’m starting slowly with 20 minutes a day... . Repeat after me: I AM ENOUGH! #nicoleluongo #whatcplookslike #iamenough #selfie #selfcare #nationalstressawarenessday
    • @theouai’s Leave in Conditioner was part of my #selfcaresunday. . I love how it helps my curls dry nicely.. . I got it in my @fabfitfun box.. . Sign up + get $10 off your @fabfitfun Spring Box (every box is slightly different) with my code https://t.fabfitfun.com/aff_c?offer_id=13&aff_id=24104.. . #nicoleluongo #whatcplookslike #fabfitfun #fffgiveaway #GiveaOUAI #fabfitfunaffiliate #selfcare
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