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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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    • The Seattle Great Wheel Goes Green for World CP Day! Credit: King 5 News
    The Seattle Great Wheel Goes Green for World CP Day! Photo credit: King 5 News
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    Cerebral Palsy Facts
    • I got dressed head to toe in @kimgravel’s clothes + @bellebeautybykg’s makeup for her show on @qvc2 at 1 PM EST.. . Watch to laugh, shop, and let’s see if she shares my picture on the air again! . . The jeans I’m wearing are Item number A343791. . The sweater (A301910) I’m wearing is on clearance! https://www.qvc.com/Belle-by-Kim-Gravel-Feather-Knit-Bell-Sleeve-Sweater.product.A301910.html?sc=SRCH. . I'm wearing @amystranqvc’s ring. I hardly ever take it off, it's beautiful! https://www.qvc.com/Diamonique-Black-%26-Clear-Asscher-Cut-Ring%2C-Platinum-Clad.product.J276996.html?sc=SRCH . Okay, now it’s back to my @cuddlduds pj’s from @qvc! #nicoleluongo #whatCPlookslike #GoGreenforCP #GoGreen4CP #kimgravel #bellebykimgravel #bellebeautybykg #believeinyourownbeauty #qvc #qvc2 #qvcbeauty #qvcfashion #loveqvc #makeup #clothes #fashion #sunday #sundayfunday #selfie #smile
    • How cute are these Minnie Mouse slipper socks from @kohls? #nicoleluongo #whatcplookslike #kohls #minniemouse #slippersocks #socks #cozy #warm #fauxfur #nomorecoldfeet #goodnight #sleeptight #sweetdreams 🧦
    • Why am I sharing a picture of these girls’ shoes I found at @kohls? Because it only took me 45 years to find a shoe that looks like something a woman my age would wear. LOL! . . I have cerebral palsy — and I wear a girls’ size 2-3 shoe depending on the style — so, finding a shoe that’s not meant for a child can be challenging. . Plus, walking in any type of heel (even a 2 inch heel like this one) can be a struggle (it’s awkward for me) if not impossible. . . Many young girls and/or women with CP can’t walk in heels at all. I’m lucky I have options, as limited as they may be. . There have been many times in my life when I was desperate to find shoes without bows. I also longed to wear strappy sandals with a high heel with a fancy dress. I’ll never be able to and that’s okay. But, a girl can dream, right? . . Many people take the simple act of walking for granted. Having a disability (especially cerebral palsy) makes putting one foot in front in front of the other more difficult for us.. . I don’t need a wheelchair and although I’m high functioning (I was even before #SDRChangesLives surgery), I avoid going to places because of the walking that would be involved — or, because navigating crowds or stairs without railings by myself won’t work without a helping hand — literally!. . I’ll have to practice walking on these shoes so I’ll muster up the courage to actually wear them. They even look cute with my @cuddlduds pj’s from @qvc! . . Remember that having a disability (whether physical or otherwise) doesn’t mean you can’t have cute shoes, or feel pretty, or go dancing, or do whatever your heart desires.. . You’re worth it! And, so am I! 👠 #nicoleluongo #whatCPlookslike #cp #cerebralpalsy #cerebralpalsyawareness #disability #disabilityawareness #disabilities #inclusion #truth #shoes #cuteshoes #sexyshoes #bootieshoes #kohls #fashion #cuddlduds #qvc #loveqvc #thestruggleisreal #walkthisway
    • #FBF to when What Cerebral Palsy Looks Like was named one of the top 10 YouTube channels to follow in 2018 via @feedspotapp! #nicoleluongo #whatCPlookslike #YouTube #youtubechannels #youtuber #videos #topten #CP #cerebralpalsy #cerebralpalsyawareness #flashbackfriday
    • Participant number 61 ✅! CONFIRMED: The Block in Chattanooga, Tennessee will #gogreen4cp in 2019! . . . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. I’m up to THIRTY-THREE states so far! See link in BIO! #nicoleluongo #whatCPlookslike #makinghistory #chattanooga #tennessee #theblock #CP #cerebralpalsy #cerebralpalsyawareness #thankyou #omg #wow
    • State number 33 ✅! Participant number 60 ✅! CONFIRMED: The Pawtucket River Bridge in Pawtucket, Rhode Island will #gogreen4cp in 2019! . . . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. I’m up to THIRTY-THREE states so far! See link in BIO! #nicoleluongo #whatCPlookslike #makinghistory #worldcpday #pawtucket #rhodeisland #bridges #CP #cerebralpalsy #cerebralpalsyawareness #thankyou #omg #wow
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