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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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  • Dancing with SDR!

    Cerebral Palsy

    Dancing with SDR!

    Nicole Luongo is dancing with SDR six months after the life-changing surgery. Watch her walk up and down stairs without holding on for the first time ever!

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    • Newsletter

    whatcplookslike

    #Author of Naked Desires
    >100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
    I wrote this for @huffpost after #RobinWilliams di I wrote this for @huffpost after #RobinWilliams died. Link in bio. • • In it, I share some of what happened to me. Don't be fooled by my smile. It's tough being alone 24/7. Especially when you’re an extrovert. • • When I say I’m alone 24/7, I mean all day, every day. Even on most birthdays now (I turn 48 in about three weeks). • • All these years (14) later, I still don’t understand why friends who once considered me like family acted like I moved — or worse — died. It hurts. If someone is important to you, you make time for them. Period. 💚💚💚 #nicoleluongo #cerebralpalsy #cerebralpalsyandmentalhealth #depression #loneliness #MentalHealthAwarenessWeek #MentalHealthMonth #endthestigma #whatcplookslike #whathappenedtoyou #youthinkyouknow #realtalk
    Another episode of #CPConversations ✅! • • Another episode of #CPConversations ✅! • • Swipe to see who I interviewed for an episode that will air on 5/20, which is #globalaccessibilityawarenessday! • • @maryfashik, thank you for everything you do at @upgradeaccessibility! • • Want to see my latest episode with @stefpenn from @maxandmegear? Click the link in my bio. • • Makeup @itcosmetics (CC Cream) @bellebeautybykg (brows, concealer, eyeshadow, eyeliner + mascara) @lauragellerbeauty (blush + highlighter) @doll10beauty (lip crayon + gloss) Top @kimgravel for @qvc. 💚💚💚 #nicoleluongo #cerebralpalsy #whatcplookslike #ableism #chronicillness #accessibility #disabilityrights #upgradeaccessibility #qvcbeauty
    NEW EPISODE for #pediatricstrokeawarenessmonth! LI NEW EPISODE for #pediatricstrokeawarenessmonth! LINK IN BIO. • • In this episode of CP Conversations, I talk to Steph Degodny @maxandmegear, a warrior Mama to Max (a pediatric stroke survivor) and the Founder of Max & Me, a company that creates funky socks made to be worn with AFOs (ankle foot orthosis) — inspired by Max but made for everyone. • • We discuss the story surrounding Max’s birth, how hemiplegic cerebral palsy affects him, and the impetus behind Max and Me. Steph also talked about the Inclusion Revolution, her partnership with WAWOS @wawosorg (We’re All Working on Something), and why she prefers the term Extra Needs instead of Special Needs. • • Plus, we get a peek at the beautiful socks she creates, and the scoop on when Max & Me will be featured in JCPenney’s @jcpenney new adaptive department. • • All episodes are available on YouTube, Spotify, Amazon Music, TuneIn, iHeart Radio, Podbean, and Pandora! 💚💚💚 #nicoleluongo #CPConversations #podcasts #cerebralpalsy #disability #mompreneur #momlife #adaptiveclothing #socks #specialneeds #MaxandMe #InclusionRevolution
    May is MENTAL HEALTH AWARENESS MONTH. • • May May is MENTAL HEALTH AWARENESS MONTH. • • May 10-16 is #mentalhealthawarenessweek. Did you know there’s connection between ADULTS with #cerebralpalsy + #mentalhealth? • • Swipe to see the @uofmichigan study I referenced during my presentation at the 2020 Cerebral Palsy Conference via @gmssvt. • • Learn more about our next conference (and how YOU can join us) on October 1 & 2 2021 at cerebralpalsyconference.org. 💚💚💚 #nicoleluongo #cerebralpalsy #CPNE2021 #MentalHealthMatters #MentalHealthAwarenessMonth #umich #wellnesswednesday
    My May @passionandgrowth MINDFULLNESS 📦 is here My May @passionandgrowth MINDFULLNESS 📦 is here! • • This amazing company was created by @thelomichelle. She used to be a nurse and now she’s a #bossbabe! All of the products are from #womenownedbusinesses! P&G was voted Best Personal Growth Box in US Subscription Box Awards. • • May is #nationalfostercaremonth. Passion & Growth partnered with Ashley Lemeiux from @nationalangels to thank foster moms for everything they do. • • A portion of the proceeds from the @passionandgrowth JUNE box, as well as donations from some of their caring subscribers, will go towards giving self-care to foster moms! Oh yeah there’s a private FB group where you can take advantage of monthly guest speakers, self-care resources, PLUS a community of fun, inspiring women! • • Want to join us? Use my referral link and get $10 off your first box. Link in bio @whatcplookslike. ❤️❤️❤️ #subscriptionbox #madebywomen #supportsmallbusiness #mindfullness #fostermomlife #passionandgrowth #selfcare
    Happy Mother’s Day to all those who are celebrat Happy Mother’s Day to all those who are celebrating, especially moms taking care of adults + children with #disabilities. • • I'd be so appreciative if you clapped for my story on @medium by hitting the 👏 button at the end of the article as many times as you want. You can can 👏 for my other stories, too. Link in bio. It helps me earn extra money although it's literally only $0.05 (not joking, apparently you need a TON of views to make any real money). Thanks! P.S. I’m missing my mom today. She died tragically — she was killed under the care of a #SouthFlorida nursing home — on 1/30/17, one day before her what would have been her 88th birthday. ❤❤❤ #nicoleluongo #whatCPlookslike #alzheimerscaregiver #caregiverlife #cerebralpalsy #SDRChangesLives #mothersday
    @carsondaly’s interview with @jenniferaniston on @carsondaly’s interview with @jenniferaniston on the @todayshow inspired me to write this for @huffpost. Link in bio @whatcplookslike. • • Please remember women who choose not to have children (or are unable to) on #mothersday, along with women who have lost their mothers. I fall into both categories — childfree by choice and motherless. ❤️❤️❤️ #nicoleluongo #cerebralpalsy #whatCPlookslike #childfree #childless #motherless #huffpost #huffpostwomen #carsondaly #jenniferaniston #todayshow #thankyou
    What #podcast hosts do to get ready for their clos What #podcast hosts do to get ready for their close up. 😂 • • Makeup from @bellebeautybykg @doll10beauty @itcosmetics and @lauragellerbeauty. • • Necklace by @liavalenciakey @valenciakeydesign. • • Top by @isaacmizrahiny @qvc. • • Check out my latest #CPConversations episode at the link in my bio @whatcplookslike. All episodes are available on YouTube, Spotify, Amazon Music, TuneIn, iHeart Radio, Podbean, and now Pandora! 💚💚💚 #nicoleluongo #cerebralpalsy #whatcplookslike #fridayfeeling #selfiegram #makeup #qvc #qvcbeauty #wearpurple for #pediactricstrokeawareness
    NEW EPISODE for #teacherappreciationweek! LINK IN NEW EPISODE for #teacherappreciationweek! LINK IN BIO • • In this episode of CP Conversations, I talk to David Figueroa @davidscpfitness, a former multisport athlete and a three-time state champion cyclist, who is currently a middle school teacher with @americorps in Florida. • • We discuss life with spastic hemiplegia, a doctor’s prediction that he would never read, write or talk, and how losing his mom at a young age willed him to succeed. • • David also shares the challenges of living in his native Puerto Rico versus the United States, the importance of letting your actions, not your disability define who you are, and how the decision to move his body changed his life. • • All episodes are available on YouTube, Spotify, Amazon Music, TuneIn, iHeart Radio, Podbean, and now Pandora! 💚💚💚 #nicoleluongo #CPConversations #podcasts #cerebralpalsy #adaptivesports #fitnessjourney #teachers #thankateacher #americorps #makeadifference #florida #puertorico #whatcplookslike
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