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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

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  • About Nicole
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    • What CP Looks Like
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    • SDR FAQS
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  • 911: Where Were You When Poem by Nicole Luongo

    Poetry

    911: Where Were You When

    This 911 poem looks back on the tragedy that occurred in America on September 11, 2001. We will never forget the lives that were lost on that day.

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  • About Nicole Luongo | What CP Looks Like

    Cerebral Palsy

    We Are Cerebral Palsy

    Author and poet Nicole Luongo pens this We Are Cerebral Palsy poem celebrating National CP Awareness Day in the United States on March 25 along with the 17 million people worldwide living with the most common physical disability in childhood.

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  • Lover's Lane Poem from Naked Desires by Nicole Luongo

    Poetry

    Lover’s Lane

    Lover’s Lane is a Valentine’s Day poem from Naked Desires – a poetry book by author and disability advocate, Nicole Luongo.

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  • Naked Desires by Nicole Luongo

    Poetry

    Naked Desires

    Naked Desires is the titular poem from Nicole Luongo’s book — a heart wrenching memoir, poetic diary about her quest for true love.

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  • Poetry

    Forever Love

    It stands the test of time like aged cheese and fine wine a perfect blend of the days and nights of our lives the dance between the sheets the music that beats to the rhythm of our hearts… forever love. (c) Nicole Luongo 9/14/13.

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  • Poetry

    Lovers in the Night

    The attraction between us is so painful it hurts to look into each other’s eyes We’ve fought this feeling for far too long giving into our desires cannot be wrong Tonight is the right time for us to be lovers in the night. (c) Nicole Luongo 4/15/12.

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  • Poetry

    Loverboy

    Loverboy I want a boy toy my very own loverboy someone to be my play thing a man who doesn’t mind hanging from a string a boy toy would bring me lots of joy will you be my loverboy? (c) Nicole Luongo A poem from Naked Desires.

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  • Poetry

    The Vow

    I went to see “The Vow” today. The movie is inspired by true events. It tells the story of a young married couple (Leo and Paige) whose lives are turned upside down when the Paige suffers a traumatic brain injury as a result of a car crash and doesn’t remember her husband. Although the movie

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  • Poetry

    Forbidden Love

    Forbidden Love  Our bodies melted between the sheets of passion that lay in a heap on my bed Sheets that are reckless like the expression of our forbidden love warm and soft waiting to be touched Sheets that are now neat and crisp but not clean of the lust that is deeply woven in the

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    Newsletter

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    whatcplookslike

    #Author of Naked Desires
    >100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
    Getting ready to tape my first episode of the CP C Getting ready to tape my first episode of the CP Conversations Podcast with Nicole Luongo (that’s me) for cerebralpalsyconference.org!... • • My guest is Kathy O’Connell from @radiantabilities! We’ll talk about self-love, that’s the theme for February. ❤️❤️ #nicoleluongo #whatcplookslike #cerebralpalsy #cpne2021 #peoplewithdisabilities #selflove
    I couldn’t finish all of #GHUTV’s Core off the I couldn’t finish all of #GHUTV’s Core off the Floor because my internet went out! #nicoleluongo #cerebralpalsy #whatcplookslike #coreworkout #workoutmotivation #sundayfunday
    I sent this letter to @joebiden at @potus @whiteho I sent this letter to @joebiden at @potus @whitehouse asking him #GoGreen4CP on March 25, 2021 for National #CerebralPalsy Awareness Day.. • • “Dear President Biden, My name is Nicole Luongo, and I have cerebral palsy. I'm an author, a disability advocate and a writer. My work has been published by HuffPost, The Mighty, Yahoo, and more. In 2019, I became the first person ever to get at least one building, bridge, landmark (even NFL stadiums) in almost all 50 states (48) to light up in green on March 25 for National CP Awareness Day and on October 6 (I had lightings in three other countries for this day) for World CP Day. Check out my list of over 100 lightings, which includes the Delaware State Capitol and Route 1 Bridge in Delaware, at https://nicoleluongo.com/go-green-4-cp/ My campaign was covered on the news in Rhode Island, and it was also covered in two other states, as well as in print media. As you know, 20% of the population, including you live with a disability. Representation is so vital, so I'm writing to ask you to sign a proclamation declaring March 25 National CP Awareness Day, and to light the White House in green to celebrate and represent over 700,000 adults and children living with CP, the most common disability in childhood. My mother was a life-long devout Catholic, and she was killed by the same nursing home (8 months prior) that made global headlines after 12 people died in their care during Hurricane Irma in Hollywood, FL. She had Alzheimer's and she died on 1/30/17, one day before what would have been her 88th birthday. Please help me honor my mother's (the mother of eleven, I'm her youngest child) legacy of giving back by lighting up the White House in green on March 25, 2021. Thank you, Nicole Luongo Plantation, FL” • • GET INVOLVED! One letter won’t do it. Send YOUR letters asking @joebiden + @kamalaharris to light up @whitehouse in GREEN for National CP Awareness Day on March 25, 2021. Go to white house.gov/contact #nicoleluongo #advocacymatters #whatcplookslike #cpawareness #cerebralpalsy #advocacy #joebiden #whitehouse
    I'm so excited to be part of the book launch team I'm so excited to be part of the book launch team for "Believe IT: How to Go from Underestimated to Unstoppable" by @jamiekernlima. Join us, let’s do this together! • • Believe IT when I tell you that this book is incredible! Everyone with a dream needs to read it! • • Go to www.believeit.com/team #believeitbook #jamiekernlima
    👀... • • OMG you guys!!! I haven’t left m 👀... • • OMG you guys!!! I haven’t left my house in almost 11 months. I checked the mail and this was in it! Jeffrey @pressureluckcooking, one of my favorite people in the world, sent me an autographed copy of his National Best Seller The Step-By-Step Instant Pot Cookbook!! • • You all know I LOVE cooking in my two Instant Posts @instantpotofficial. Jeff has been my go to from the beginning and I tell everyone about him and his recipes. • • Jeffrey was on the @rachaelrayshow TODAY 1/22 so check it out! His new book comes out in April (pre-order is available)! #instantpotcooking #cookbooks #pressureluckcooking
    Two podcasts I’ve two weeks ✅... • • My gu Two podcasts I’ve two weeks ✅... • • My guest appearance on Whitney Bailey’s Spastic Chatter Podcast ✅!... • • The episode will be released next month! #nicoleluongo #whatCPlookslike #cerebralpalsy #cpne2021 #SDRChangesLives #poscast
    I felt like a turtle today but GHUTV’s Beginner I felt like a turtle today but GHUTV’s Beginner Gold Interval Walking Workout 2 with @chrisfreytag ✅!.. • • I wanted to get it in early because I’ll be on @wheelchairwhit’s podcast (taped) in a few hours. 😊... • • P.S. My bunion/toe seems to be fine, but I lost my footing yesterday and fell (rarely happens, I’m lucky). I have an ugly bruise on my thigh. :-( #nicoleluongo #cerebralpalsy #whatcplookslike #walking #workoutmotivation
    GET READY!! https://cerebralpalsyconference.org vi GET READY!! https://cerebralpalsyconference.org via Green Mountain Support Services @gmssvt! 💚💚💚 #nicoleluongo #whatcplookslike #cerebralpalsy #cpconversations #podcast #podcastlife #bucketlist
    I don’t know what happened l, but my big toe is I don’t know what happened l, but my big toe is hurting slightly (almost like arthritis, this has never happened before). So, I pivoted...Chair Strength with @chrisfreytag ✅! • • I did most of it on the floor since my feet don’t touch the ground in my chair. 😂 🏋️💪💥 #nicoleluongo #whatcplookslike #cerebralpalsywarrior #chairworkout #justdoit
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