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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Follow This Success Formula, Achieve Anything!

    Cerebral Palsy

    Follow This Success Formula, Achieve Anything!

    Nicole Luongo shares the success formula she applied after selective dorsal rhizotomy (SDR) surgery. Follow her simple advice to achieve anything in life. Ability + Motivation + Attitude = The Secret to Success!

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  • Ode to Michael Jackson: The King of Pop

    Poetry

    Ode to Michael Jackson: The King of Pop

    Michael Jackson’s death inspired poet Nicole Luongo to write an ode to The King of Pop. This clever poem will test your knowledge of 21 of his songs. How many of them do you know?

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  • Bike Camp Bravery with Cerebral Palsy

    Cerebral Palsy

    Bike Camp Bravery with Cerebral Palsy

    Cerebral palsy advocate Nicole Luongo vlogs about braving bike camp at 41 years old, after having selective dorsal rhizotomy (SDR) surgery in 2013. Watch her do what she once thought was impossible.

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  • Angst of Alzheimer's

    Writing

    The Angst of Alzheimer’s

    What does life look like if forgetting is your normal state of mind? Disability advocate Nicole Luongo shares her Alzheimer’s caregiver experience in honor of her mom.

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  • Social Media: Friend or Foe?

    Writing

    Social Media: Friend or Foe?

    How friendly is Facebook? Social media connects us, yet Americans are lonelier than ever. In this FB Live video, Nicole Luongo shares statistics + tips on how to stay sane, take control online.

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  • Mental Health: Take Charge, Feel Better

    Cerebral Palsy

    Mental Health: Take Charge, Feel Better

    May is Mental Health Awareness Month. Let’s talk about it, take charge of it, end the stigma! Learn the statistics, tips to feel better and find out about the connection between cerebral palsy + mental health.

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  • White House Response Regarding Cerebral Palsy Awareness

    Cerebral Palsy

    White House Cerebral Palsy Awareness Response

    Disability advocate Nicole Luongo shares what happened when she wrote to The White House about Cerebral Palsy Awareness Month + SDR, a life-changing surgery for adults and children with cerebral palsy. Follow her tried-and-true tips to get your cause noticed.

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Meet Nicole

Welcome! I created What CP Looks Like to raise awareness for cerebral palsy, the most common disability in childhood.

AS SEEN ON

Nicole Luongo on Yahoo!

GO GREEN FOR CP ON ABC6

Go GREEN FOR CP ON ABC6

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Nicole Luongo on Medium
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LET’S CONNECT

LET’S CONNECT

FEATURED ON

Nicole Luongo on HuffPost
Nicole Luongo on The Mighty
Nicole Luongo on Yoocan

AWARDS

Cerebral Palsy Youtube Channels

Newsletter

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whatcplookslike

#Author of Naked Desires
>100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
Getting ready to tape my first episode of the CP C Getting ready to tape my first episode of the CP Conversations Podcast with Nicole Luongo (that’s me) for cerebralpalsyconference.org!... • • My guest is Kathy O’Connell from @radiantabilities! We’ll talk about self-love, that’s the theme for February. ❤️❤️ #nicoleluongo #whatcplookslike #cerebralpalsy #cpne2021 #peoplewithdisabilities #selflove
I couldn’t finish all of #GHUTV’s Core off the I couldn’t finish all of #GHUTV’s Core off the Floor because my internet went out! #nicoleluongo #cerebralpalsy #whatcplookslike #coreworkout #workoutmotivation #sundayfunday
I sent this letter to @joebiden at @potus @whiteho I sent this letter to @joebiden at @potus @whitehouse asking him #GoGreen4CP on March 25, 2021 for National #CerebralPalsy Awareness Day.. • • “Dear President Biden, My name is Nicole Luongo, and I have cerebral palsy. I'm an author, a disability advocate and a writer. My work has been published by HuffPost, The Mighty, Yahoo, and more. In 2019, I became the first person ever to get at least one building, bridge, landmark (even NFL stadiums) in almost all 50 states (48) to light up in green on March 25 for National CP Awareness Day and on October 6 (I had lightings in three other countries for this day) for World CP Day. Check out my list of over 100 lightings, which includes the Delaware State Capitol and Route 1 Bridge in Delaware, at https://nicoleluongo.com/go-green-4-cp/ My campaign was covered on the news in Rhode Island, and it was also covered in two other states, as well as in print media. As you know, 20% of the population, including you live with a disability. Representation is so vital, so I'm writing to ask you to sign a proclamation declaring March 25 National CP Awareness Day, and to light the White House in green to celebrate and represent over 700,000 adults and children living with CP, the most common disability in childhood. My mother was a life-long devout Catholic, and she was killed by the same nursing home (8 months prior) that made global headlines after 12 people died in their care during Hurricane Irma in Hollywood, FL. She had Alzheimer's and she died on 1/30/17, one day before what would have been her 88th birthday. Please help me honor my mother's (the mother of eleven, I'm her youngest child) legacy of giving back by lighting up the White House in green on March 25, 2021. Thank you, Nicole Luongo Plantation, FL” • • GET INVOLVED! One letter won’t do it. Send YOUR letters asking @joebiden + @kamalaharris to light up @whitehouse in GREEN for National CP Awareness Day on March 25, 2021. Go to white house.gov/contact #nicoleluongo #advocacymatters #whatcplookslike #cpawareness #cerebralpalsy #advocacy #joebiden #whitehouse
I'm so excited to be part of the book launch team I'm so excited to be part of the book launch team for "Believe IT: How to Go from Underestimated to Unstoppable" by @jamiekernlima. Join us, let’s do this together! • • Believe IT when I tell you that this book is incredible! Everyone with a dream needs to read it! • • Go to www.believeit.com/team #believeitbook #jamiekernlima
👀... • • OMG you guys!!! I haven’t left m 👀... • • OMG you guys!!! I haven’t left my house in almost 11 months. I checked the mail and this was in it! Jeffrey @pressureluckcooking, one of my favorite people in the world, sent me an autographed copy of his National Best Seller The Step-By-Step Instant Pot Cookbook!! • • You all know I LOVE cooking in my two Instant Posts @instantpotofficial. Jeff has been my go to from the beginning and I tell everyone about him and his recipes. • • Jeffrey was on the @rachaelrayshow TODAY 1/22 so check it out! His new book comes out in April (pre-order is available)! #instantpotcooking #cookbooks #pressureluckcooking
Two podcasts I’ve two weeks ✅... • • My gu Two podcasts I’ve two weeks ✅... • • My guest appearance on Whitney Bailey’s Spastic Chatter Podcast ✅!... • • The episode will be released next month! #nicoleluongo #whatCPlookslike #cerebralpalsy #cpne2021 #SDRChangesLives #poscast
I felt like a turtle today but GHUTV’s Beginner I felt like a turtle today but GHUTV’s Beginner Gold Interval Walking Workout 2 with @chrisfreytag ✅!.. • • I wanted to get it in early because I’ll be on @wheelchairwhit’s podcast (taped) in a few hours. 😊... • • P.S. My bunion/toe seems to be fine, but I lost my footing yesterday and fell (rarely happens, I’m lucky). I have an ugly bruise on my thigh. :-( #nicoleluongo #cerebralpalsy #whatcplookslike #walking #workoutmotivation
GET READY!! https://cerebralpalsyconference.org vi GET READY!! https://cerebralpalsyconference.org via Green Mountain Support Services @gmssvt! 💚💚💚 #nicoleluongo #whatcplookslike #cerebralpalsy #cpconversations #podcast #podcastlife #bucketlist
I don’t know what happened l, but my big toe is I don’t know what happened l, but my big toe is hurting slightly (almost like arthritis, this has never happened before). So, I pivoted...Chair Strength with @chrisfreytag ✅! • • I did most of it on the floor since my feet don’t touch the ground in my chair. 😂 🏋️💪💥 #nicoleluongo #whatcplookslike #cerebralpalsywarrior #chairworkout #justdoit
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