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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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  • Follow This Success Formula, Achieve Anything!

    Cerebral Palsy

    Follow This Success Formula, Achieve Anything!

    Nicole Luongo shares the success formula she applied after selective dorsal rhizotomy (SDR) surgery. Follow her simple advice to achieve anything in life. Ability + Motivation + Attitude = The Secret to Success!

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  • Ode to Michael Jackson: The King of Pop

    Poetry

    Ode to Michael Jackson: The King of Pop

    Michael Jackson’s death inspired poet Nicole Luongo to write an ode to The King of Pop. This clever poem will test your knowledge of 21 of his songs. How many of them do you know?

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  • Bike Camp Bravery with Cerebral Palsy

    Cerebral Palsy

    Bike Camp Bravery with Cerebral Palsy

    Cerebral palsy advocate Nicole Luongo vlogs about braving bike camp at 41 years old, after having selective dorsal rhizotomy (SDR) surgery in 2013. Watch her do what she once thought was impossible.

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  • Angst of Alzheimer's

    Writing

    The Angst of Alzheimer’s

    What does life look like if forgetting is your normal state of mind? Disability advocate Nicole Luongo shares her Alzheimer’s caregiver experience in honor of her mom.

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  • Social Media: Friend or Foe?

    Writing

    Social Media: Friend or Foe?

    How friendly is Facebook? Social media connects us, yet Americans are lonelier than ever. In this FB Live video, Nicole Luongo shares statistics + tips on how to stay sane, take control online.

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  • White House Response Regarding Cerebral Palsy Awareness

    Cerebral Palsy

    White House Cerebral Palsy Awareness Response

    Disability advocate Nicole Luongo shares what happened when she wrote to The White House about Cerebral Palsy Awareness Month + SDR, a life-changing surgery for adults and children with cerebral palsy. Follow her tried-and-true tips to get your cause noticed.

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Meet Nicole

Welcome! I created What CP Looks Like to raise awareness for cerebral palsy, the most common disability in childhood.

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Cerebral Palsy Youtube Channels

Nicole Luongo on The Mighty
Nicole Luongo on Yoocan
The Seattle Great Wheel Goes Green for World CP Day! Credit: King 5 News
The Seattle Great Wheel Goes Green for World CP Day! Photo credit: King 5 News
Cerebral Palsy Facts
Cerebral Palsy Facts
Cerebral Palsy Facts
  • To start off 2019 on the right foot, I made a commitment to follow @chrisfreytag’s HIIT IT HARD calendar. . I might feel fluffy or a bit slow, but who cares! I’m BACK!. . Day 19 (Cardio Step 2 WITHOUT the step) from #GHUTV’s HIIT IT HARD calendar ✅!I LOVE step workouts. They’re so much fun!. . The only problem is that — although I have a step — I can’t use it. The pace is too fast for my limitations due to #cp, so I do the workout on the floor!. . Although I’m very coordinated, just can’t do everything on the step — and I wish I could because it looks like a blast! . Don’t let your #disability stop you from exercising. Modify and do what you can do! . . Sign up for a GOLD membership for $20 for the first year with the code CHRISGOLD20 at http://go.gethealthyutv.com/gold . If you need some workout tips (whether you have cerebral palsy or not), check out my blog post/FB live video: https://nicoleluongo.com/5-cerebral-palsy-workout-tips/. . Remember that no matter your fitness level, or your limitations — I have #cerebralpalsy, so I modify a lot — YES YOU CAN! . I want to hear from YOU! What are your goals for 2019? #nicoleluongo #whatCPlookslike #cerebralpalsyawareness #getit #goals #hiitworkout #justdoit #newyear #newyearnewme #happynewyear #newyearnewyou #exercise #fitness #fitnessmotivation #cardio #stepworkout #workout #workoutathome #selfcare #pressplay #yesyoucan #youdoyou
  • To start off 2019 on the right foot, I made a commitment to follow @chrisfreytag’s HIIT IT HARD calendar. . I might feel fluffy or a bit slow, but who cares! I’m BACK!. . Day 18 Functional Interval Training (FIT) from #GHUTV’s HIIT IT HARD calendar ✅!. . This was my first workout with @shelleyhawkins7007. Loved it; I needed the slower pace today. . . Sign up for a GOLD membership for $20 for the first year with the code CHRISGOLD20 at http://go.gethealthyutv.com/gold . If you need some workout tips (whether you have cerebral palsy or not), check out my blog post/FB live video: https://nicoleluongo.com/5-cerebral-palsy-workout-tips/. . Remember that no matter your fitness level, or your limitations — I have #cerebralpalsy, so I modify a lot — YES YOU CAN! . I want to hear from YOU! What are your goals for 2019? #nicoleluongo #whatCPlookslike #cp #cerebralpalsyawareness #getit #goals #hiitworkout #justdoit #newyear #newyearnewme #happynewyear #newyearnewyou #exercise #fitness #fitnessmotivation #workout #workoutathome #functionaltraining #functionalfitness #fit #fittraining #selfcare #pressplay #yesyoucan
  • #TBT: This spontaneous picture that my brother insisted I take — he put that hat on my head — ended up being the back cover photo for my book! Watch my television interview here: https://nicoleluongo.com/about-naked-desires-book/ #nicoleluongo #whatCPlookslike #author #authors #authorsofinstagram #authorsofig #advocate #poet #cerebralpalsy #book #books #nakeddesires #love #romance #tvinterview #nbc6 #throwbackthursday #selfie #strikeaposeanywhere
  • To start off 2019 on the right foot, I made a commitment to follow @chrisfreytag’s HIIT IT HARD calendar. . I might feel fluffy or a bit slow, but who cares! I’m BACK!. . There are many days where I feel drained and simply can’t even think of doing any another squat! This is one of those days.. . It’s SO important to stretch — especially if you have cerebral palsy — so, today I listened to my body. . Day 17 (20 minutes of Yin Yoga) from #GHUTV’s HIIT IT HARD calendar ✅!. . I don’t like yoga. I can’t do many of the poses because of my limitations, but I do the best I can! . . I used @idealstretch (which I haven’t used in years) to help me with my range of motion. . I’m so happy to be back working out with my favorite instructor @chrisfreytag + @nourishmovelove!. . . Sign up for a GOLD membership for $20 for the first year with the code CHRISGOLD20 at http://go.gethealthyutv.com/gold . If you need some workout tips (whether you have cerebral palsy or not), check out my blog post/FB live video: https://nicoleluongo.com/5-cerebral-palsy-workout-tips/. . Remember that no matter your fitness level, or your limitations — I have #cerebralpalsy, so I modify a lot — YES YOU CAN! . I want to hear from YOU! What are your goals for 2019? #nicoleluongo #whatCPlookslike #cp #cerebralpalsyawareness #getit #goals #hiitworkout #justdoit #newyear #newyearnewme #happynewyear #newyearnewyou #exercise #fitness #fitnessmotivation #workout #workoutathome #yinyoga #yoga #relax #stretch #idealstretch #restore #selfcare #pressplay #yesyoucan
  • CONFIRMED: Participant number 95 ✅! The Gilbert Water Tower in Gilbert, Arizona will #GoGreen4CP on October 6, 2019 for @worldcpday!. . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. . . I’m up to FORTY-FIVE states and 94 participants in the U.S. 🇺🇸 — plus one in Canada 🇨🇦 — for a total of 95!. . See link in BIO! #nicoleluongo #whatCPlookslike #arizona #gilbertaz #gilbertarizona #gilbertwatertower #watertower #towers #lightitup #CP #cerebralpalsy #cerebralpalsyawareness #worldcpday #thankyou #omg #wow
  • 📷: http://stiles.com/new-river-center CONFIRMED: Participant number 94 ✅! 200 East Las Olas Boulevard in Ft. Lauderdale will #GoGreen4CP on March 25, 2019 for National Cerebral Palsy Day AND on October 6, 2019 for @worldcpday!. . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. . . I’m up to FORTY-FIVE states and 93 participants in the U.S. 🇺🇸 — plus one in Canada 🇨🇦 — for a total of 94!. . See link in BIO! #nicoleluongo #whatCPlookslike #fortlauderdale #downtownfortlauderdale #lasolas #lasolasblvd #florida #sfl #lightitup #CP #cerebralpalsy #cerebralpalsyawareness #worldcpday #thankyou #omg #wow
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