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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
    • What CP Looks Like
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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  • Follow This Success Formula, Achieve Anything!

    Cerebral Palsy

    Follow This Success Formula, Achieve Anything!

    Nicole Luongo shares the success formula she applied after selective dorsal rhizotomy (SDR) surgery. Follow her simple advice to achieve anything in life. Ability + Motivation + Attitude = The Secret to Success!

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  • Ode to Michael Jackson: The King of Pop

    Poetry

    Ode to Michael Jackson: The King of Pop

    Michael Jackson’s death inspired poet Nicole Luongo to write an ode to The King of Pop. This clever poem will test your knowledge of 21 of his songs. How many of them do you know?

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  • Bike Camp Bravery with Cerebral Palsy

    Cerebral Palsy

    Bike Camp Bravery with Cerebral Palsy

    Cerebral palsy advocate Nicole Luongo vlogs about braving bike camp at 41 years old, after having selective dorsal rhizotomy (SDR) surgery in 2013. Watch her do what she once thought was impossible.

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  • Angst of Alzheimer's

    Writing

    The Angst of Alzheimer’s

    What does life look like if forgetting is your normal state of mind? Disability advocate Nicole Luongo shares her Alzheimer’s caregiver experience in honor of her mom.

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  • Social Media: Friend or Foe?

    Writing

    Social Media: Friend or Foe?

    How friendly is Facebook? Social media connects us, yet Americans are lonelier than ever. In this FB Live video, Nicole Luongo shares statistics + tips on how to stay sane, take control online.

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  • White House Response Regarding Cerebral Palsy Awareness

    Cerebral Palsy

    White House Cerebral Palsy Awareness Response

    Disability advocate Nicole Luongo shares what happened when she wrote to The White House about Cerebral Palsy Awareness Month + SDR, a life-changing surgery for adults and children with cerebral palsy. Follow her tried-and-true tips to get your cause noticed.

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Meet Nicole

Welcome! I created What CP Looks Like to raise awareness for cerebral palsy, the most common disability in childhood.

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Cerebral Palsy Youtube Channels

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The Seattle Great Wheel Goes Green for World CP Day! Credit: King 5 News
The Seattle Great Wheel Goes Green for World CP Day! Photo credit: King 5 News
Cerebral Palsy Facts
Cerebral Palsy Facts
Cerebral Palsy Facts
  • I cooked a whole chicken in my @instantpotofficial. . . I used @makeyourmeals instructions for searing it in the pot. It wasn’t as crispy as I wanted, so I put it under the broiler. . . I don’t know how to use the broiler properly, so that’s why it’s a bit charred on the top. . . This is the second chicken I’ve ever made. Now, I want to make chicken broth from it in my IP. I hope it’s as easy as it looks! #nicoleluongo #cooking #food #instantpot #pressurecooker #wholechicken #instafood #instafoodpic #sundayfunday
  • Happy #worldpremiere Day! . . . I was born 2.5 months early, weighing 2 lbs 13 oz. I think I stayed in the incubator for two months until I weighed five pounds. . . . Born with #cerebralpalsy, I couldn’t walk on my own until I was five years old (after having tendon lengthening surgery), so I would put my hands in shoes (see pic) and walk that way. I was one determined little girl, that hasn’t changed! . . Thirty-five years later, I had selective dorsal rhizotomy (SDR) with Sr. Park two and a half months before turning 40. . . . Now, I advocate for CP + SDR so that other adults and children can get new legs like me, and hopefully not have to wait their entire lives to find out about this life-changing surgery with Dr. Park — who just performed his 4,000th SDR couple of days ago — at @stlchildrens. . . Life hasn’t always been easy — I fought to make it into this world — and, I’ll continue to fight for all of us so that CP finally gets recognized by the media on National Cerebral Palsy Day and on @worldcpday. . . . CP matters. We matter. And, all preemies are living proof that #goodthingscomeinsmallpackages! 💚 #nicoleluongo #whatcplookslike miraclebaby #smallbutmighty #warrior #cp #cerebralpalsyawareness #advocacy #awareness #education #SDRChangesLives #justsayhi #wematter #worldprematurityday
  • #FBF to my #fblive interview with Ryan Raghoo from @enablednotdisabled. This guy is going places! . . . Watch here: https://nicoleluongo.com/overcoming-odds-para-athlete-ryan-raghoo/ #nicoleluongo #whatCPlookslike #CP #cerebralpalsy #cerebralpalsyawareness #advocacy #ryanraghoo #paraathlete #sports #tedx #london #enablednotdisabled #flashbackfridays
  • Participant number 53 ✅! CONFIRMED: Houston City Hall in Houston, Texas will #gogreen4cp in 2019! . . . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. I’m up to THIRTY so far! See link in BIO! #nicoleluongo #whatCPlookslike #makinghistory #worldcpday #houston #texas #houstoncityhall #cityhall #CP #cerebralpalsy #cerebralpalsyawareness #thankyou #omg #wow
  • Participant number 52 ✅! CONFIRMED: Boston City Hall in Boston, Massachusetts will #gogreen4cp in 2019! . . . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. I’m up to twenty-nine so far! See link in BIO! #nicoleluongo #whatCPlookslike #makinghistory #worldcpday #boston #massachusetts #bostoncityhall #cityhall #CP #cerebralpalsy #cerebralpalsyawareness #thankyou #omg #wow
  • State number 30 ✅! Thirty states in 30 days ✅! 💚 CONFIRMED: The McAulliffe-Shephard Discovery Center in Cocord, New Hampshire will #gogreen4cp in 2019! . . . My goal is to get at least one building, landmark, etc. in EVERY state to #gogreenforcp in 2019. I’m up to twenty-nine so far! See link in BIO! #nicoleluongo #whatCPlookslike #makinghistory #worldcpday #concord #newhampshire #christamcauliffe #mcauliffesheparddiscoverycenter #discoverycenter #space #rocket #rocketscience #CP #cerebralpalsy #cerebralpalsyawareness #thankyou #omg #wow
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