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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Today Show Interview with Stephanie Mansour

    Cerebral Palsy

    Today Show Interview with Stephanie Mansour

    Today Show Fitness Contributor Stephanie Mansour talks to Start Today member Nicole Luongo about working out with cerebral palsy + more!

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  • General Hospital star Maurice Benard.

    Cerebral Palsy

    General Hospital Star Maurice Benard Advocates for Cerebral Palsy

    My interview with General Hospital star Maurice Benard who plays Sonny Corinthos on the long-running soap opera.

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  • A picture of a bonfire by Jens Mahnke on Pexels

    Poetry

    Bonfire of Loneliness

    Bonfire of Loneliness is a poem that describes living alone during a global pandemic, and the toll it takes on daily life; Pandemic Poetry.

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  • Disability Pride Mont Poem by Nicole Luongo

    Poetry

    Disability Pride Month Poem

    Disability Pride Month Poem by Nicole Luongo. Celebrate and learn the meaning of the Disability Pride Flag.

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  • Why Cerebral Palsy Representation Matters

    Cerebral Palsy

    Why Cerebral Palsy Representation Matters

    Nicole Luongo explains why Cerebral Palsy Representation, and how you can help the word out during Cerebral Palsy Awareness Month.

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  • Don't You Forget About CP

    Cerebral Palsy

    Don’t You Forget About CP

    ‘Don’t You Forget About CP’ is a call to action for the cerebral palsy community to help promote awareness. Our stories matter, and they need to be told.

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  • Promote Cerebral Palsy Awareness

    Cerebral Palsy

    Let’s Promote Cerebral Palsy Awareness Together

    Disability advocate Nicole Luongo discusses how you can promote cerebral palsy awareness + why you should get involved in the advocacy movement.

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Meet Nicole

Welcome! I created What CP Looks Like to raise awareness for cerebral palsy, the most common disability in childhood.

My Today Show Interview with Stephanie Mansour

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whatcplookslike
Sometimes in life, you work towards something FOR Sometimes in life, you work towards something FOR YEARS and one day it FINALLY happens! Today was that day for me. And, I had to wait until I was 50!!! For years, I’ve worked to get National attention for cerebral palsy (CP). My dream is to be interviewed live on the @todayshow…I’m looking at you, @hodakotb). 😉 While that hasn’t happened YET, I’m excited to announce that I was interviewed for a @starttoday_ profile piece that will be published on @todayshow’s WEBSITE next month! Stay tuned! P.S October 6 is @worldcpday so please wear green, and keep your fingers crossed that they announce this on TODAY. I know @alroker has green glasses! 😉 💚💚 💚 ID: Nicole is an Italian woman with straight, dark brown hair. She’s standing in front of a yellow wall. She’s smiling, and she’s wearing hoop earrings and a Kelly green scoop neck top from @kimgravel @bellebykimgravel via @qvc. #whatCPlookslike #todayshow #starttoday #cerebralpalsy #cerebralpalsyawareness #exercise #fitness #bucketlist #representationmatters #girlonfire
When you grow up with a visible disability like ce When you grow up with a visible disability like cerebral palsy, you can’t choose to hide it. Honestly, that’s the first thing people notice about you. For the first 30+ years of my life, people stared at my “funny” walk AND my face because I had horrible acne. And, to add salt to the wound, they (yes, even family) would comment that I’m so pretty if it weren’t for those bumps on my face. Of course I tried to cover them up with makeup, but that doesn’t work when you have a hormonal issue (most likely the case with me). And I tried Proactiv more times than I can remember (it doesn’t work for everyone; the main ingredient Benzoyl Peroxide was making my skin WORSE) along with almost every other acne product on the planet. Later in life, I went to dermatologists, and I tried antibiotics, prescription creams. It was always hit or miss; they didn’t work all the time or 100%. Then one day (I think I was 33; I’m 50 now), I said ENOUGH IS ENOUGH! I didn’t want to be on those awful pills anymore. I took a chance and finally ordered an ALL NATURAL spray-on product that I’d read about on the QVC beauty boards. It took awhile, but one simple product (that sadly is no longer available) created by a woman CLEARED MY SKIN! Although I still have two bottles, I don’t use it anymore. I’ll always be grateful for what it did for me. So, here’s a makeup free selfie for anyone who’s ever had to cover up something they wanted to hide. I’m done covering up. I was beautiful with bumps on my face, and I’m beautiful now. So are you! P.S. People dealing with a visual challenge (acne, disability, weight, etc.) KNOW there’s an issue. No need to point out the obvious. 😉 #whatCPlookslike #cerebralpalsy #disabilities #acne #makeupfree #selfie #skincare #fiftyandfabulous #ThursdayThoughts #Pink #Perfect ID: A makeup-free photo of Nicole. She has curly, dark brown hair and she’s wearing a blue tank top.
Here’s what I do when I want to try something I’ve never dine before like interview @mauricebenard (the star of #generalhospital) or get over 100 buildings in 48 states to #GoGreen4CP in 2019. This was filmed with the @uniqu.us FlexiStand. #mondaymotivation #whatCPlookslike #instagramreels
A huge thank you to my sister Laurie for going to A huge thank you to my sister Laurie for going to the @improvkcmo to meet @mauricebenard for me!!!!!!!!!!! @coastalentnyc Check out my interview with Maurice on my What Cerebral Palsy Looks Like YouTube Channel (link in bio) and subscribe to Maurice’s STATE OF MIND channel, too! #bucketlist #kansascity #generalhospital #mauricebernard
Having fun playing with makeup! Brands I used: @b Having fun playing with makeup! Brands I used: @bellebykimgravel (Easy Peasy concealer in Tan, applied as foundation) and Easy Peasy Lemon Squeesy Mineral Foundation in Medium Tan) @doll10beauty (Glass Slipper lipstick) @lauragellerbeauty (Baked Brulee Blush in Berry Creme + Gilded Honey Illuminator @queencosmeticsstore (Enchanted Forest eyeshadows Fairy Godmother + Pixie Dust applied wet) and Wanderlust lipgloss) #whatCPlookslike #makeuplookoftheday #makeup #straighthairdontcare #fiftyandfabulous
Here’s how to make YOGURT in an @Instant Pot wit Here’s how to make YOGURT in an @Instant Pot with just TWO INGREDIENTS: @fairlife milk + @fage yogurt! #whatCPcookslike #yogurt #InstantPot #reelsinstagram #reels
TOMORROW, JULY 25, LIVE AT NOON EST: As Disability TOMORROW, JULY 25, LIVE AT NOON EST: As Disability Pride Month comes to a close, tune into @todayshow Fitness Contributor Stephanie Mansour's (@stepitupwithsteph) FB page to learn more about my fitness journey! If you have CP, you know what a BIG deal this is to be featured as a member of the Today Show’s Start Today community. Our stories (especially adults with CP) rarely get the opportunity to be told, let alone reach such a wide audience. I hope you'll join us. If you can't make it, please watch the replay. And tag someone you think might be interested! 😉 #whatCPlookslike #cerebralpalsy #disabilitypride #disabilitypridemonth #fitnessmotivation #workoutmotivation #starttoday #todayshow #SDRChangesLives #disabilityinclusion #representationmatters ID: A graphic with a pink and red background. At the top white text reads: Meet a Start Today Member! Below, in the center, There’s a picture of Stephanie Mansour. Below the picture white text reads: Join Stephanie Mansour for a live Q&A with one of your fellow walkers. There’s a white divider line, and below it white text reads: Tuesday at 12:00 pm EST
WELCOME!! I'm an author, a published writer, and a WELCOME!! I'm an author, a published writer, and a disability advocate dedicated to raising awareness for cerebral palsy (CP) + selective dorsal rhizotomy (SDR), a life-changing surgery for adults (like myself) and children with cerebral palsy (CP). DID YOU KNOW? In 2019, without any contacts, experience, money, or sponsors, I did what no other person, nonprofit, etc. has ever been able to do — secure over 100 #GoGreen4CP lightings in 48 states AND three other countries. I did the same thing on March 25 (National Cerebral Palsy Awareness Day), too. The project took six months of non-stop work. It all started with an idea.💡 This is a picture of the Seattle Great Wheel - my FIRST lighting - for World CP Day on October 6, 2018, which was announced live on @king5seattle! Check out the list of lightings at https://nicoleluongo.com/go-green-4-cp/ In 2021, I started a campaign to get the White House to light up in green on March 25 for National Cerebral Palsy Awareness Day. My efforts led to a tweet that has 60K+ views. This sparked a movement, and a Change petition which received 40K+ signatures in less than two months. What's NEXT? The BIG NEWS is that ⬇ ⬇ ⬇ I’ll be interviewed by @todayshow Fitness Contributor Stephanie Mansour (follow her @stepitupwithsteph) LIVE on her FB page on JULY 25 at noon EST. NOTE: The date is subject to change. You’ll learn more about my fitness journey, what I love about our Start Today family + more! #NicoleLuongo #disabilitypridemonth #disabilitypride #disabilityadvocate #whatCPlookslike #cerebralpalsy #cerebralpalsyawareness #SDRChangesLives #representationmatters #disabilityawareness #tbt #ThrowbackThursday #bucketlist #todayshow #starttoday #anythingispossible #seattle #seattlewashington
Let’s talk about sex, baby! NEWS FLASH: Disabled Let’s talk about sex, baby! NEWS FLASH: Disabled people can have sex! And, it's rude to ask us about it unless we're friends, and we agree to go there... Watch the full episode with me and my friend @davidscpfitness @cerebralpalsyandfitnesspodcast at https://youtu.be/UjumWtEzP8k #whatCPlookslike #cerebralpalsy #myths #disabilityawareness #sex #podcasts #throwback #tbt #throwbackthursday #truth #bringingsexyback #disabilitypride #DisabilityPrideMonth
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