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Nicole Luongo | What CP Looks Like

Cerebral Palsy Awareness + Education

  • Home
  • About Nicole
    • Press
    • Published Articles
    • Contact
  • Book
  • Go Green for CP
  • Selective Dorsal Rhizotomy
    • SDR FAQS
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  • Why Cerebral Palsy Representation Matters

    Cerebral Palsy

    Why Cerebral Palsy Representation Matters

    Nicole Luongo explains why Cerebral Palsy Representation, and how you can help the word out during Cerebral Palsy Awareness Month.

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  • Don't You Forget About CP

    Cerebral Palsy

    Don’t You Forget About CP

    ‘Don’t You Forget About CP’ is a call to action for the cerebral palsy community to help promote awareness. Our stories matter, and they need to be told.

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  • Promote Cerebral Palsy Awareness

    Cerebral Palsy

    Let’s Promote Cerebral Palsy Awareness Together

    Disability advocate Nicole Luongo discusses how you can promote cerebral palsy awareness + why you should get involved in the advocacy movement.

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  • 911: Where Were You When Poem by Nicole Luongo

    Poetry

    911: Where Were You When

    This 911 poem looks back on the tragedy that occurred in America on September 11, 2001. We will never forget the lives that were lost on that day.

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  • Go Green for CP World CP Day

    Cerebral Palsy

    5 Reasons to Go Green on World CP Day

    Cerebral palsy advocate Nicole Luongo explains five reasons why you should Go Green on World CP Day, which is celebrated annually on October 6.

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  • Poetry

    Begin Again

    Begin Again by Nicole Luongo is an encouraging poem for anyone who feels life has knocked them down too many times.

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  • Nicole Luongo SDR Changes Lives

    Cerebral Palsy

    How SDR Surgery Changed My Life

    Cerebral Palsy advocate Nicole Luongo vlogs about how ‘SDR Changes Lives’ one year after selective dorsal rhizotomy surgery with Dr. T.S. Park on St. Louis, on the cusp of turning 40 years old.

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Meet Nicole

Welcome! I created What CP Looks Like to raise awareness for cerebral palsy, the most common disability in childhood.

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CP Conversations Podcast

https://youtu.be/emgmZCI1fOo

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whatcplookslike

#Author of Naked Desires
>100 #GoGreen4CP #cerebralpalsy lightings Founder #whatcplookslike #Writer @huffpost @themightysite @yahoo @yoocandoanything
NEW EPISODE for #ptsdawarenessmonth! Today is also NEW EPISODE for #ptsdawarenessmonth! Today is also my birthday. 🥳 LINK IN BIO. • • In this episode of CP Conversations, I talk to Jeris Getter @coachgetter, the first coach with cerebral palsy in the University of Dayton’s @universityofdayton @daytonflyers @daytonflyersfb history. • • We discuss what it was like growing up on a farm, the difficulty of making friends in school, his passion for football, and how he made his dream of coaching a reality. • • Since June is Post Traumatic Stress Disorder (PTSD) Awareness Month, Jeris also talked about his symptoms, how asking for help drastically changed the quality of his life. Plus, we learn what’s coming up on the field, why he’s in talks with ESPN @espn! • • All episodes are available on YouTube, Spotify, Amazon Music, TuneIn, iHeart Radio, Pandora, and Podbean! [ID: A green background. On the right in white text, it reads: CP Conversations. There is a light green line just underneath. Under the line in white text, it reads: Episode 16. On the next line it reads, A Conversation with Jeris Getter. On the left is a picture of Jeris on the sidelines. He’s wearing a navy hoodie, and he has a beanie on his head. Superimposed over the picture is another picture of Jeris. A white, bald man with a beard smiling at the camera. He’s wearing wearing a red and white striped shirt with a white shirt underneath. At the bottom is the YouTube description.] 💚💚💚 #nicoleluongo #CPCoversations #cerebralpalsy #cpawareness #GoGreen4CP #football #universityofdayton #udflyers #ptsd #espn #podcasts
#TuesdayTruth: There is no right way to advocate! #TuesdayTruth: There is no right way to advocate! • • So, what’s my secret? There is none. You just have to START doing it. • • Pick one or more of the suggestions I talked about during my breakout session at the 5th Annual Virtual Cerebral Palsy Conference last year and you’ll be on your way. • • Notice what’s repeated several times: SHARE YOUR STORY! That’s where advocacy starts, and anyone can do it! 💚💚💚 #nicoleluongo #disabilityadvocacy #disabilities #cerebralpalsy #whatcplookslike #startnow #tuesdaymotivation [ID: A white background. In the center, there’s a screenshot on a gray background of a slide from Nicole’s breakout session at the 5th Annual Virtual Cerebral Palsy Conference in 2020. At the top is a green colored box with a white border. Inside the box, the first line of black text reads Easy Ways YOU Can Advocate for CP. on the second line, there’s a copyright symbol which is a the letter C inside a circle, followed by the name Nicole Luongo. There’s a black vertical divider line, followed by the text What CP Looks Like. On the first row there are three green colored boxes with black borders and black text. The first box reads Start a BLOG or a Podcast. The second box reads SHARE YOUR STORY! The third box reads Wear Green, followed by Use #GoGreen4CP underneath it. On the second row, there are three green colored boxes with black borders and black text. The first box reads SHARE YOUR STORY! The second box reads Get your child’s class involved. The third box reads SHARE YOUR STORY! On the third row there are three green colored boxes with black borders and black text. The first box reads Create a Fundraiser, followed by Make bracelets or shorts… underneath it. The second box reads Contact radio + t.v. stations. The third box reads USE YOUR PHONE, followed by Post about National CP Awareness Day (3/25) + World CP Day (10/6) on social media underneath it.]
My first #GHUTV workout with JC @jclippold ✅! St My first #GHUTV workout with JC @jclippold ✅! Strength Day Split Day - Push-Pull Day Chest and Back ✅! I didn’t want to do it, but I did. I’ve been feeling sad because my 48th birthday is tomorrow, and I’ll be all alone again (not because of the pandemic). • • I’m alone 24/7 and I don’t want to be by myself on my birthday, so I asked a friend if we could open up our Passion and Growth @passionandgrowth boxes together on Zoom and she said yes! If any of you are around tomorrow, I’d love some HBD wishes. Thanks! ❤️ #nicoleluongo #whatcplookslike #cerebralpalsy #upperbodyworkouts #workoutmotivation #justdoit
Yesterday (June 6) was National Eyewear Day. • Yesterday (June 6) was National Eyewear Day. • • This picture is from September 2019...the last time I went out with a friend. 👓 👓 👓 #nicoleluongo #whatcplookslike #NationalEyewearDay #NationalGlassesDay #glasses #clearglasses #thestruggleisreal [ID: A picture of Nicole sitting in her car smiling, looking directly into the camera. She’s wearing a black top, clear glasses, silver twisted hoop earrings and red lipstick.]
Swipe for some #selfcare reminders… • • For Swipe for some #selfcare reminders… • • For more, check out Cerebral Palsy Self-Care Tips at the link in my bio. 💚💚💚 #nicoleluongo #cerebralpalsy #whatcplookslike #selfcaretips #happysunday #itsokaytobedifferent [ID: A green background. Slide one - White text reads It’s okay to… Nicole’s Instagram @whatcplookslike is written in black text on the bottom, in the center. Slide 2 - White text reads Change your mind. Nicole’s Instagram @whatcplookslike is written in black text on the bottom center. Slide 3 - White text reads Do things your way. Nicole’s Instagram @whatcplookslike is written in black text on the bottom, in the center. Slide 4 - White text reads Say no. Nicole’s Instagram @whatcplookslike is written in black text on the bottom center. Slide 5 - White text reads Speak Up. Nicole’s Instagram @whatcplookslike is written in black text on the bottom center. Slide 6 - White text reads BE YOU! Nicole’s Instagram @whatcplookslike is written in black text on the bottom center.]
Here’s your reminder from @cleowade that YOU, MY Here’s your reminder from @cleowade that YOU, MY DARLING, MATTER. • • Sometimes, disabled people feel that they don’t matter, their voices don’t matter. • • Maybe it’s because no one has really listened to us throughout our lives, or because society continues to push ableist views that we’re fighting internally, or thru advocacy work. • • I constantly have to remind myself that I matter JUST BECAUSE I’M ME. I didn’t grow up feeling that way. It’s easy to fall into the trap of thinking you have to accomplish things or behave in certain ways in order to matter. • • Don’t buy it. IT’S NOT TRUE! I know it’s not easy, especially when we’re bombarded with images and posts of people living their best lives. • • Most of what we see in our feeds are highlight reels. Remember that when you feel like you’re not enough, you’re not doing enough, you’re not worthy, or that you’re not advocating in the “right” way. There is no right way. Just be yourself! • • There is no one like you. No one can do what you do the WAY you do it! Always remember that and never, ever settle for less than you deserve! ❤️❤️❤️ #nicoleluongo #cerebralpalsy #cerebralpalsystrong #whatcplookslike #advocacy #ableism #disabilities #wematter #youareworthy #selflove #weekendvibes [ID: An orange background. In the center there’s a picture of a white @cleowade mug on a white coaster. There is multicolored text on the mug that reads YOU, MY DARLING, MATTER.]
#GHUTV’s Ab Burner workout with @shelleyhawkins7 #GHUTV’s Ab Burner workout with @shelleyhawkins7007 + @chrisfreytag ✅! I’ve had my workout clothes on for hours. Better late than never lol 😂! 🏋️‍♀️ 🏋️‍♀️ 🏋️‍♀️ #nicoleluongo #cerebralpalsystrong #whatcplookslike #coreworkout #absworkout #justdoit #workoutmotivation
June is #BrainandAlzheimersAwarenessMonth. • • In this interview, I talk to Maurice Benard @mauricebenard @mbstateofmind about the impact of @generalhospitalabc’s Alzheimer's storyline. LINK IN BIO @whatcplookslike. P.S. My mom had Alzheimer’s and I was one of her primary caregivers. • • All episodes are available on YouTube, Spotify, Amazon Music, TuneIn, iHeart Radio, Pandora + Podbean! 💚💚💚 #nicoleluongo #CPConversations #cerebralpalsy #alzheimersawareness #GeneralHospital #FlashbackFriday #flashback #podcasts [ID: A green background. On the right in white text, it reads: CP Conversations. There is a light green line just underneath. Under the line in white text, it reads: Episode 9. On the next line it reads, A Conversation with Maurice Benard (Part 1). On the left is a tv with different colored rows on it. Superimposed over the tv is a picture of Maurice. A Hispanic man with dark slicked back hair wearing a black shirt with the words State of Mind written in red above an illustration of Maurice’s profile, outlined in red.]
Sliding into the weekend like.... I LOVED being i Sliding into the weekend like.... I LOVED being in the water when I was a kid. Now that I think about it, it was the only place where CP didn’t matter. I could do all sorts of things in the water — flips, handstands, etc. — that I couldn’t do on land. Oh, what a feeling! 💚💚💚 #nicoleluongo #cerebralpalsy #whatcplookslike #fbf #flashbackfriday #summervibes #swimming [ID: A beige background. There’s a screenshot of an old picture. A young Nicole, maybe ten years old, is on her back smiling, sliding down a pool slide. She’s wearing a one piece bathing suit with a white background and a brown print on top of it.]
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