Nicole Luongo writes about a disturbing cerebral palsy news trend, why the media must stop describing people with disabilities as ‘suffering’ + the power of positive language. Words matter.
Cerebral Palsy
Disability Poem Shatters Perceptions in a Powerful Way
What do you see when you look at me? This disability poem from Marty Gregoire, founder of Footsteps of WYN, shatters perceptions in a powerful way.
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Cerebral Palsy
My Journey from SDR to Special Books by Special Kids
Disability advocate Nicole Luongo vlogs about her incredible journey with SDR, a life-changing surgery for cerebral palsy— and how it led to an interview with Special Books by Special Kids.
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Cerebral Palsy
SDR Update: Pilates and Physical Therapy
Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay! I’ve heard about the benefits of Pilates, and I’ve wanted to try it. I know it will work my muscles in an entirely different way. Jumping around
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Cerebral Palsy
After SDR: A Balancing Act
So be sure when you step, Step with CARE and great TACT. And remember that Life’s a great Balancing Act!” ~Dr Seuss: Oh, The Places You’ll Go! I have cerebral palsy. I had selective dorsal rhizotomy (SDR) with Dr. T.S. Park. I’m 2.5 years (and one month) post-op. Here’s a progress video documenting my improved
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Cerebral Palsy
SDR Update: Cool Running!
I have cerebral palsy. This is how I run almost eleven months after my Selective Dorsal Rhizotomy (SDR) surgery with Dr. TS Park on March 29, 2013. Note: I could run before SDR.
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Cerebral Palsy
Dancing with SDR!
Nicole Luongo is dancing with SDR six months after the life-changing surgery. Watch her walk up and down stairs without holding on for the first time ever!
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Cerebral Palsy
From SDR Surgery to Rock Climbing!
I recently purchased a Living Social deal for four indoor rock climbing sessions. I’ve never done it before, so I have to get ready! Jon, my physical therapist at Plantation Medical Rehab & Wellness, created this contraption. Unfortunately, the volume on my camera stinks so you may not be able hear him explaining what we
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Cerebral Palsy
The Power of Possibility
“Start by doing what’s necessary; then do what’s possible; and suddenly you are doing the impossible.” ~St. Francis of Assisi~ Today is the nine month anniversary of my blog. It is also the day I received news that will dramatically change my life. I am a candidate for Selective Dorsal Rhizotomy (SDR), a surgical procedure