My Journey from SDR to Special Books by Special Kids

Disability advocate Nicole Luongo vlogs about her incredible journey with SDR, a life-changing surgery for cerebral palsy— and how it led to an interview with Special Books by Special Kids.

So be sure when you step, Step with CARE and great TACT. And remember that Life’s a great Balancing Act!” ~Dr Seuss: Oh, The Places You’ll Go! I have cerebral palsy. I had selective dorsal rhizotomy (SDR) with Dr. T.S. Park. I’m 2.5 years (and one month) post-op. Here’s a progress video documenting my improved

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Cerebral Palsy

Dancing with SDR!

Nicole Luongo is dancing with SDR six months after the life-changing surgery. Watch her walk up and down stairs without holding on for the first time ever!

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Poetry

Forever Love

It stands the test of time like aged cheese and fine wine a perfect blend of the days and nights of our lives the dance between the sheets the music that beats to the rhythm of our hearts… forever love. (c) Nicole Luongo 9/14/13.

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Writing

Wade’s Words

“When people believe in you, you can do amazing things in this world.” –Dwyane Wade I used to be such an avid basketball fan that – at the tender age of two – my love for Julius “Dr. J” Erving earned me the nickname “Doc” bestowed upon me by my brother, John. Or, as I’ve

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Cerebral Palsy

JUMPING FOR JOY!

SDR UPDATE – TEN WEEKS POST-OP: Here I am jumping for joy in physical therapy (PT) at Plantation Medical Rehab & Wellness. Although I could jump before the surgery (not sure if I could jump up on a step), I would not have been able to do this three weeks ago due to lack of

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Poetry

FLIRT

Flirt I want to be free to be me the person I am not the person the world wants me to be Free me with your love I want to be accepted as a beautiful, intelligent woman Love me for my: body, mind, and spirit I want to experience true love the kind that tastes

Cerebral Palsy