Cerebral palsy affects 17 million people worldwide. While it’s the most common physical disability in childhood, it’s also widely misunderstood. Nicole Luongo debunks popular cerebral palsy myths in this What CP Looks Like FB Live video.
Cerebral Palsy
Dealing with Disabilities: What Not to Say
Nicole Luongo talks about what not to say to people with disabilities, especially those with Alzheimer’s disease. Let’s think before we speak.
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Cerebral Palsy
5 Cerebral Palsy Workout Tips
The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) defines physical fitness as “a general state of health that results in your ability to carry out daily tasks without getting too tired.” It wasn’t until I had selective dorsal rhizotomy (SDR) surgery and became a disability advocate — that I learned the damage (often referred to as “early aging”) spasticity, or abnormal muscle tightness, does to our bodies.
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Cerebral Palsy
The Cerebral Palsy News Trend Media Must End
Nicole Luongo writes about a disturbing cerebral palsy news trend, why the media must stop describing people with disabilities as ‘suffering’ + the power of positive language. Words matter.
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FB Live Videos
Kathy O’Connell’s Tips for Dating with a Disability
In this What CP Looks Like FB Live interview, disability advocate Nicole Luongo talks with Kathy O’Connell about how to have confidence and succeed at dating with a disability.
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Cerebral Palsy
Disability Poem Shatters Perceptions in a Powerful Way
What do you see when you look at me? This disability poem from Marty Gregoire, founder of Footsteps of WYN, shatters perceptions in a powerful way.
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Cerebral Palsy
Meet Robyn Cummins from World CP Day
My work as a disability advocate has introduced me to people, opportunities from around the globe. I’m particularly proud to be a member of the first World CP Day Committee. I had the honor of interviewing Robyn Cummins from World CP Day (WCPD), which was founded in 2012, and is now celebrated in 62 countries. Robyn
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Cerebral Palsy
My Journey from SDR to Special Books by Special Kids
Disability advocate Nicole Luongo vlogs about her incredible journey with SDR, a life-changing surgery for cerebral palsy— and how it led to an interview with Special Books by Special Kids.
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Cerebral Palsy
SDR Update: Pilates and Physical Therapy
Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay! I’ve heard about the benefits of Pilates, and I’ve wanted to try it. I know it will work my muscles in an entirely different way. Jumping around