• Fighting Your CP Lion with Matt Rich

    In this What CP Looks Like FB Live interview, disability advocate Nicole Luongo talks about fighting your CP lion with motivational speaker, Matt Rich. Tune in to find out the meaning of cerebral palsy, how to change the way you think about having a disability, why “inspiration porn” may be good for the cause + more!

    Continue Reading
  • Celebrating Cerebral Palsy Awareness Month

    Disability advocate Nicole Luongo is celebrating Cerebral Palsy Awareness Month by sharing 31 facts for each day of the month about the most common disability in childhood. Show your support by wearing green all month and on March 25, National CP Awareness Day in the United States.

    Continue Reading
  • 5 Cerebral Palsy Workout Tips

    The American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) defines physical fitness as “a general state of health that results in your ability to carry out daily tasks without getting too tired.” It wasn’t until I had selective dorsal rhizotomy (SDR) surgery and became a disability advocate — that I learned the damage (often referred to as “early aging”) spasticity, or abnormal muscle tightness, does to our bodies.

    Continue Reading
  • Disability Poem Shatters Perceptions in a Powerful Way

    I’m an author, poet living with cerebral palsy (CP). When I read this disability poem by Marty Gregoire, who also thrives with CP, — and is the founder of Footsteps of WNY, an organization that provides charitable assistance to individuals with cerebral palsy — it really spoke to me. Benefits of Writing Poetry There are many benefits to

    Continue Reading
  • SDR Update: Pilates and Physical Therapy

    Nearly 3.5 years after my surgery, I finally found something worthy of some of my fundraising money: a purple (my favorite color) AeroPilates Reformer Plus purchased on eBay! I’ve heard about the benefits of Pilates, and I’ve wanted to try it.  I know it will work my muscles in an entirely different way. Jumping around

    Continue Reading